Although diarrhea, fatigue and abdominal pain remain the most common celiac disease symptoms, the condition actually has more than 100 potential symptoms and associated medical conditions, some very common and some quite unusual.
In addition, it's not at all uncommon to have minor health complaints clear up once you go gluten-free. For example, when I started the diet, my lifelong, seriously annoying dandruff suddenly disappeared, my gums quit bleeding and my cuticles stopped peeling.
What were your main celiac symptoms? Also, what minor health complaints surprised you by disappearing on the gluten-free diet?Tell Your Story
Only just found out!
- Hi everyone Good to read your stories makes me feel like not alone. I have suffered from lots of symptoms for years and gone to the doctors for years for separate symptoms and nobody knew what was wrong with me, i am 23 years old and have only just worked out i am celiac, i am on a gluten free diet and all my symptoms have gone. Problem is doctors want me to eat gluten to get a proper diagnosis but i refuse as i only need to eat the smallest amount and all my symptoms come back for days! My symptoms , abdominal pains, swollen glands, extreme tiredness, symmetrical rash on body massive lumpy rash which starts on my index finger. Teeth problems and ulcers in mouth. Migraines I go through stages of feeling depressed. I also have just started getting symptoms of raynards and strange tastes in my mouth all the time. Anyone relate?
- —Guest Lucy
I thought it was normal to be that way
- Despite my Mother and Aunt both being diagnosed with celiac disease it was never considered that I might have it. I always had loose stools, was anemic, often had painful bloating and frequent gastric flu with intense pain. At one point I even saw a specialist and had a barium X-ray as I was regularly getting gastric flu for a week and not able to have anything but water. It would leave me weak with a tenderness down my right side under my ribs. He didn't ask my history, found nothing and put it down to stress. Later I thought it was IBS or parasites. It wasn't until an Ayurvedic doctor picked up on it that I requested a test from my doctor. My result was off the charts as my body was in such a strong reaction to gluten.
- —Guest S-BC
- I've been burning in stomach.really bad.my.mid back hurts really bad.really bad drymonth.and really bad.neckpain.also constapation.with bad hemmorrds.I have fibermal.and low vit d. Also low blood pressure.hopefully I get help sufferd long
- —Guest amy
- No matter how much medicine i took and go to hospital,nth is happening too me and its has been 2 month suffering,plz doctor help?
- —Guest Passang dorji
You went to school to be a Dr...
- I'm 45 and for the past 30 years I've been clinically diagnosed- Intestinal difficulties: IBS, "spastic colon", Constipation. Thyroid: Hashimoto's Thyroiditis. Mental/head issues: ADD, Depression, Anxiety, Panic Attacks, Migraines. Malnutrition: Liver deficiency, Iron deficiency/ anemia. Nerve: Peripheral neuropathy. Skin Problems: Dry skin/Exema, Cold Sores/Mouth sores, Impetigo, Pallor, Easy bruising, Hives. Epistaxis (nose bleeds) Fatigue or general weakness: Fluid retention, Joint/muscle pains & ache, Muscle cramps & weakness, Muscle wasting, fatigue, overall not feeling well & the natural result of those naturally concludes with Irritability (& frustration). It was the Dermatitis Herpetiformis, & "brain fog" that lead me to Google... Blogs claimed Gluten. I took myself off & after a tragic "gluten withdrawal" I refuse to eat it for a "proper diagnosis". I know this is it & I hope my endocrinologist can offer other tests to prove my conclusion.
- —Guest Goo
Had enough of this
- Treated for anxiety depression acid reflux headach and es bloating for 15 years did my own research and discovered celiacs. Went to these and they said no way! I told them to send me to a specialist and they did, only for the specialist to say the same thing! I demanded they test me anyway and it came back positive. Lol what a joke. I am also allergic to fresh peaches tree nuts and now possibly corn! Since going gluten free my symptoms are a distant memory(until of course I get glutened) if I eat corn I exhibit the same symptoms that I do when I eat gluten! I have also lost over 85 pounds since gluten free( lost it the first 8 months) prior to going gluten free I tried everything to lose weight with no success of more then 10 pounds or so. Are food is killing us people. We need to stop the madness!
- —Guest Jen
in mid diagnostic
- im 32 and gained a lot of weight like 129 lbs in 6-8 months, my body always hurts, im cold my vitamin b and d are very very low and my iron is so low I am schedualed for Fareheam Infusions. my thyroid deisease is active and I have always had hair long as below my butt to the back of my legs and now it breaks and is brittle and down to the top of my butt. I have weird sleep patterns, my lower back constantly hurts and I have to get all this better before the onocolgist will release me for my gastric bypass. he fears celiac disease is the main cause of my weight , loss of hair and skin color , as well as my appearance. he says I look like a person with this disease. till then I didn't know or realize I even look sick. I swell to the point I can't wear shoes and have been reduced to sweat pants and no job. I fell like a trashy, lazy bum.
Not Celiac but my Arthritis cleared
- Had AS (ankylosing spondylitis) from age 19 - went GF (incl corn!) at age 27 - huge change in my health and energy - now 47 so a veteran GF - gave up beer, whisky, less sugar. Remember that other dietary lectins cross react - so corn and dairy can be a problem for our confused immune systems.
- —Guest Sean
gluten kills my guts and cant sleep
- gut cramps gas bloating constipation that will not resolve. this prevents me from sleeping and its hit me right now. i always fear for my life when i get like this and i feel like i will never get to sleep again :( repeat er trips never result in any help. last time they prescribed me benedryl. heartless idiots.
- —Guest syn
What a relief!
- Low potassium, ataxia, stomach bloating, skin issues including rashes, hard red bumps , and the callous I had on my palms and soles totally disappeared. It was like baby skin and very painful for walking or writing. Did anyone else have this problem? When I had my fingerprints taken for work, it took them 45 minutes to do because my skin was so soft they wouldn`t record. The poor technicians told me they had never seen anything like that before. I felt like I was walking and talking through water. Did anyone else have that sensation? I was almost 51 years old when I saw a picture of the rash that was on my right instep on Dr. Oz`program about celiac disease. I had my gallbladder out a few years before and had since had a lot of diarrhea, but that seemed typical. I started a glutenfree diet the next day. My eyes felt moist 2 days later, my palms started having texture after a week, and my potassium level was normal when I saw my doctor 2 months later. My rashes are gone and I feel OK
- —Guest Noel rink
I'm in the full blown effects
- I was diagnosed 3 years again, but maintained it was too hard to change. I don't cook and have mostly eaten frozen dinners. (Yuk!) About a month ago I began feeling so tired--like the way you feel with the flu, but I don't have the flu. Everything was too hard. I couldn't take a shower (yes, I did stink!). I couldn't do laundry or the dishes. I couldn't sew. At first I thought it was depression, but definitely different from any depression I had before. My sister assured me it wasn't depression. I sit, eat and sleep. I take my dog out to my backyard to potty when it's too early or late for him to bark. That's all. I finally went to my dr. yesterday. I was totally exhausted by the time I was showered and dress I was ready to go to bed. I sat in my car thinking "How do I turn on the lights? How do I turn on the windshield wipers GP told me I had the effects of an illness. Now we had to find the illness. Spoke to 2 of my sister. Their response: your celiac disease. Oooooh
- —Guest Jennie
I wonder maybe i have celiac
- Well I am thirty three years old I recently had colon cancer removed and I did 3 rounds pills and chemo felt better after I stop doing chemo did pet scan found there was no cancer in my stomach its been 11 months last month I started having pain in stomach or unusual then normal and always had gas and went bathroom prolly 2 a day but then my gas came more often and I been losing weight steady for like 5 months I started at 230 day of surgery and now im down to 155 and I did the gluten free thing for few months but still had diarea tried to get off dairy as well seem like no matter what I did problems so now Im having trouble sleeping at night take 3 baths a day and read bible and pray just to help pass time they have done all tests as far gaulbladder catscan and all that no luck they doing my thyroid now im so burned out.
- —Guest john h
need relief from the pain
- I have been out to the ER 2 times this week for about a year now my stomach is bloated with or without eating I'm tired all I want for you to sleep no energy the problem is with this Obama insurance our job is to cut our insurance out so now I do not have the insurance to go to a specialist which the ER recommended there any cat scan and send everything looks the same but the inside need to be like that I sleep probably in 18 hours a day and sleep on a heating pad I cannot even get their heads for my kids because it hurts anyone else have this problem
- —Guest irritated
CD & other allergies
- I have suffered with the basic brain fog, major headaches, migraines, memory loss, problems concentrating, chronic anxiety and depression, and over time gluten ataxia (neurological attack) which caused loss of muscle control, weakened muscles, organs not working properly, loss of cognitive ability (twisted thoughts), and much more. Was diagnosed at age of 2, but my symptoms were never connected to CD. At age 26 I'm finally start to get my life back. Still not getting 100% and it takes forever to get any help. Weed has helped tremendously to get through school and in general cope with the pain. Without it I probably wouldn't be here today.
- —Guest James
- Celiac I'm 56, I always know there was something not agreeing with me. 1st I blamed milk, the bloating after a meal, the constipation, so I give up milk, felt a little better, 2nd I read where Diet M Dew was bad for ya. So I divorced that, no change.... sitting in ER for my hubby. .I was getting cramps and feeling crabby....after a roll of tums an a visit with the doc, I was diagnosed with 55 percent gluten sensitivity. ...so it was wasn't the beverages but the gluten I was eating along with them...he says stress will trigger the alergy worse...I love reading your stories. ...
- —Guest Julene