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Readers Respond: What Were Your Main Celiac Disease Symptoms?

Responses: 94

By

Updated January 16, 2012

From the article: Celiac Disease Symptoms

Although diarrhea, fatigue and abdominal pain remain the most common celiac disease symptoms, the condition actually has more than 100 potential symptoms and associated medical conditions, some very common and some quite unusual.

In addition, it's not at all uncommon to have minor health complaints clear up once you go gluten-free. For example, when I started the diet, my lifelong, seriously annoying dandruff suddenly disappeared, my gums quit bleeding and my cuticles stopped peeling.

What were your main celiac symptoms? Also, what minor health complaints surprised you by disappearing on the gluten-free diet?

Tell Your Story

Sick of Doctors NOT listening

I have been on a myriad of physicians visits in the last year. Trying to get someone to work with me and put all the medical information that I've accumulated together so I can get an answer as to why I went from (seemingly) healthy to such immobility issues. Diagnosis': Gallbladder removal, Diffuse tendonitis disease, Ankylosing Spondylitis, Degenerative Disc Disease, Chairi 1 malformation, Chronic Fatigue Immunodeficiency disease, 65/6wk weight loss, Diarrhea/Constipation, Bloating/Cramping, Dizziness/Change in eyesight, Fibromyalgia, Early Menopause, Sleep issues, vascular issues, IBS?, Small fiber sensory neuropathy, muscle twitches and spasms, Swelling in hands, face, feet, depression/Anxiety, Brittle nails, eczema, allergies, skin eruptions, tinnitus, neck pain, and brittle nails. I started having some of these issues more than 6-7 yrs ago. My current Physician is checking into whether I have Celiac Disease at this moment.
—Guest Melody

Late Diagnosis

I remember as a child always being ill with a cold or something. I also had skin rashes and lots of cavities, very smelly poo and was always tired and irritable. My Mother took me for tests as she knew something wasn't quite right, but they told her I was fine - I guess they didn't test for Ceoliac disease! I was small for my age and didn't get my first period until I was 15. I was very thin and pale but with a protruding tummy which made my Mother thing I needed to lose weight! When I reached adulthood my symptoms seemed to get a little better still without a diagnosis and I went on to gett married and have two successful pregnancies and healthy babies, although I did suffer from pre-ecalmpsia on my first. My diagnosis didn't happen until about 8 years ago when I was refered to hospital by my GP due to shortness of breath and fatigue. I had very low iron levels and a very good junior Doctor asked me if I had any allergies, when I told her that I couldn't eat bread, she guessed.
—Cassidynoreen

After all this reading i figured it out.

I have been suffering for almost a year with crippling gut pain that sends me though the roof rolling on the floor crying, horrible diahrea constantly, violent vomiting episodes, drastic weight loss, awful muscle pain, swollen, red joints that feel like i broke something in every area of my body, the stiffness never goes away, skin rashes, hot flashes, heart palpataions/racing randomly, fatigue all day so bad i can barely hold my eyes open then i can't sleep at night, back pain, brain fog, confusion, irritability, depression, mood swings, peripheral neuropathy. I was ready to give up and file a disability claim! This has stolen my life and left me jobless and pasted to the bed or couch (or toilet, depending on the day), I have bought all gluten free to see if it works, I'm going to try anything at this point. I feel lazy, sick, and as someone else put it grandly, like a bum!
—Guest sjenamourous

Getting diagnosed

I have abdominal pains,cramps,constipation,rashes,red bumps,really tired,not enough sleep,itchy eyes,easy bruising,joint/muscle pain,irritable,back pain,etc..guess what? Im only twelve!My life is miserable..did my own research and came up with Celiac Disease..i went to my doctor and asked for the bloodtest.it came back positive..my biopsy for celiac disease is going to be done this month in a few weeks.i hope i feel better and everyone feels better because its not fun to have a disease,even if its the trendy disease.
—Guest Sam

Rare symptom

I suffer firm celiac disease and have science I was 1. I suffer from abdominal pain and vomiting but interestingly vomiting isn't a symptom I have read about at all on this page? I do suffer severely from it though do I guess vomiting must just be rare. Maybe it should be added for others in the future.
—Guest Ellie

Contributed to job loss

Badly swollen elbows & sore joints, loose stools and going to the bathroom problems constantly, gut aches all the time and then was eating the wrong foods to make my stomach feel better & not knowing it was the problem, brain fog & problems with keeping up with an industry that required using your brain constantly and quickly too. Then started getting swollen lymph nodes in my jaw along with ear aches, then body aches all over, mucus and Flem issues in the morning along with runny nose and was easy to get sinus infections. Then you add undiagnosed type II diabetes with leg circulation issues and sleep apnea for a couple years. I believe the gluten issues have been with me for 20 years in one form or another, but in the last couple years got much worse. All of this came to a head in the last two working years in a professional architectural office difficult. I was not capable anymore and was fired. It was miserable. Quit gluten for a few days to a week and saw ALL symptoms retreat.
—Guest J. Coryell

Guese Kay

In reply to blisters and itching. I had this problem for years and could never find the cure. Toes used to itch until I scratched them till they bled. Finally after 30 years I found not so much a cure as an abstinance of sugary drinks whether Coke. Lemonade. orange juice or diluted drinks like cordial (25 to 35 mg) of sugar is not unusual Oh! and Don't get the idea that because it is dilute its OK. Baiscally avoid sudden overdoses of sugar some bodies can't cope and have to get rid of it somewhere. In my case it was either blisters on the foot or worse, extreme itching between the toes. Scratch them raw with a scrubbing brush yes that's right. I Controlled my sugar in take used minimal sweeteners but beware the so called natural sweeteners they're not always what you think. Mostly the sugar intake and its rapid absorption seems the problem and seem to apply mostly to liquid drinks. Now No more itching unless I mess up. Hope this helps someone.
—Guest Dennis Newland

tc

I am 46 now and I had a chronic issue with sinus. When I was 39 I had my gallbladder removed. At age 41 I was diagnosed with a hydrocele surgery to drain the water. At age 42 I had to relocate and this brought a lot of stress to me and my family. In 2009 I pulled a muscle in my back and was referred to a chiropractor. During my visit he told me he would like to get a blood test but I declined at that time. I continued to have back issues so I continued to use him. In 2012 my wife ask me to start using her dentist. After an exam the results show a little bit of tissue in my throat that my be causing me to snore and they recommend I see a sleep doctor, I did. After the exam the Dr told me to set a time for the sleep study, I did but the snoring stopped so I cancelled. I 2013 I started having sleeping issues again. I had an urgent need to urinate and noticed my skin getting flaky and dry. Shortly there after I noticed my right leg would have a depression left in it every time
—Guest tc

Possible celiac?

Since November I've had swollen inguinal lymph nodes, constipation, rashes on my arm, acid reflux, dandruff, depression, and a very bloated stomach after eating. I had a blood test in February 2013 and was told I do not have celiac's disease. My dad and sister, however, both have it. I'm so torn on what's going on. Maybe just a gluten sensitivity?
—Guest Ryan

Do I have celiac?

I am 23 years old. I can remember having many stomach problems as a child. My mother said when I was 3 years old I would scream and cry and say my tummy hurt and it would be so bloated. Finally at the age of 5 the doctors told my mom I was just very constipated. I started taking laxitives and what not didnt seem to help much and I have to take a lot for it to work. I have blood tests done for cilacs because my mother and sister have it but it came out negative. I am gassy, bloated, depressed, cant sleep, irritable, ecsema, over weight, stomach pains right after I eat, AWFUL memory, tired, and back pain. i need help! im too young for this! IS IT CILAC YOU THINK?!
—AshleighBear

Fibromyalgia

Since I was a little girl I've had many of the symptoms but was never tested for Celiacs. As far as I know there is no one in the family with the condition. At age 23 I was diagnosed with gastric reflux, IBS, acne/rosacea and chronic migraine headaches. I lost a lot of weight... I suffered from chronic constipation since I was a little girl. By age 32 I was diagnosed with fibromyalgia, insomnia, depression and vitamin D deficiency. I've been through so many different treatments for all of the above mentioned conditions and nothing would help. Then at the age of 35 I developed this massive rash all over my body. I ended up going to an allergist who ran all kinds of tests, one of them showed a severe sensitivity to gluten, that's when she decided to test me for celiac, and I finally received a single diagnosis for all of my ailments. I was freaky starting to think that it was all in my head. After being diagnosed I went on a gluten free diet and all of my symptoms went away within 7 days
—Guest Vanessa B.

Only just found out!

Hi everyone Good to read your stories makes me feel like not alone. I have suffered from lots of symptoms for years and gone to the doctors for years for separate symptoms and nobody knew what was wrong with me, i am 23 years old and have only just worked out i am celiac, i am on a gluten free diet and all my symptoms have gone. Problem is doctors want me to eat gluten to get a proper diagnosis but i refuse as i only need to eat the smallest amount and all my symptoms come back for days! My symptoms , abdominal pains, swollen glands, extreme tiredness, symmetrical rash on body massive lumpy rash which starts on my index finger. Teeth problems and ulcers in mouth. Migraines I go through stages of feeling depressed. I also have just started getting symptoms of raynards and strange tastes in my mouth all the time. Anyone relate?
—Guest Lucy

I thought it was normal to be that way

Despite my Mother and Aunt both being diagnosed with celiac disease it was never considered that I might have it. I always had loose stools, was anemic, often had painful bloating and frequent gastric flu with intense pain. At one point I even saw a specialist and had a barium X-ray as I was regularly getting gastric flu for a week and not able to have anything but water. It would leave me weak with a tenderness down my right side under my ribs. He didn't ask my history, found nothing and put it down to stress. Later I thought it was IBS or parasites. It wasn't until an Ayurvedic doctor picked up on it that I requested a test from my doctor. My result was off the charts as my body was in such a strong reaction to gluten.
—Guest S-BC

stomach

I've been burning in stomach.really bad.my.mid back hurts really bad.really bad drymonth.and really bad.neckpain.also constapation.with bad hemmorrds.I have fibermal.and low vit d. Also low blood pressure.hopefully I get help sufferd long
—Guest amy

Stomach ache

No matter how much medicine i took and go to hospital,nth is happening too me and its has been 2 month suffering,plz doctor help?
—Guest Passang dorji

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What Were Your Main Celiac Disease Symptoms?

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  3. Celiac Disease & Gluten Sensitivity
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  5. Celiac Disease Symptoms - What Were Your Main and Most Unusual Celiac Disease Symptoms

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