Although diarrhea, fatigue and abdominal pain remain the most common celiac disease symptoms, the condition actually has more than 100 potential symptoms and associated medical conditions, some very common and some quite unusual.
In addition, it's not at all uncommon to have minor health complaints clear up once you go gluten-free. For example, when I started the diet, my lifelong, seriously annoying dandruff suddenly disappeared, my gums quit bleeding and my cuticles stopped peeling.
What were your main celiac symptoms? Also, what minor health complaints surprised you by disappearing on the gluten-free diet?Tell Your Story
I'm in the full blown effects
- I was diagnosed 3 years again, but maintained it was too hard to change. I don't cook and have mostly eaten frozen dinners. (Yuk!) About a month ago I began feeling so tired--like the way you feel with the flu, but I don't have the flu. Everything was too hard. I couldn't take a shower (yes, I did stink!). I couldn't do laundry or the dishes. I couldn't sew. At first I thought it was depression, but definitely different from any depression I had before. My sister assured me it wasn't depression. I sit, eat and sleep. I take my dog out to my backyard to potty when it's too early or late for him to bark. That's all. I finally went to my dr. yesterday. I was totally exhausted by the time I was showered and dress I was ready to go to bed. I sat in my car thinking "How do I turn on the lights? How do I turn on the windshield wipers GP told me I had the effects of an illness. Now we had to find the illness. Spoke to 2 of my sister. Their response: your celiac disease. Oooooh
- —Guest Jennie
I wonder maybe i have celiac
- Well I am thirty three years old I recently had colon cancer removed and I did 3 rounds pills and chemo felt better after I stop doing chemo did pet scan found there was no cancer in my stomach its been 11 months last month I started having pain in stomach or unusual then normal and always had gas and went bathroom prolly 2 a day but then my gas came more often and I been losing weight steady for like 5 months I started at 230 day of surgery and now im down to 155 and I did the gluten free thing for few months but still had diarea tried to get off dairy as well seem like no matter what I did problems so now Im having trouble sleeping at night take 3 baths a day and read bible and pray just to help pass time they have done all tests as far gaulbladder catscan and all that no luck they doing my thyroid now im so burned out.
- —Guest john h
need relief from the pain
- I have been out to the ER 2 times this week for about a year now my stomach is bloated with or without eating I'm tired all I want for you to sleep no energy the problem is with this Obama insurance our job is to cut our insurance out so now I do not have the insurance to go to a specialist which the ER recommended there any cat scan and send everything looks the same but the inside need to be like that I sleep probably in 18 hours a day and sleep on a heating pad I cannot even get their heads for my kids because it hurts anyone else have this problem
- —Guest irritated
CD & other allergies
- I have suffered with the basic brain fog, major headaches, migraines, memory loss, problems concentrating, chronic anxiety and depression, and over time gluten ataxia (neurological attack) which caused loss of muscle control, weakened muscles, organs not working properly, loss of cognitive ability (twisted thoughts), and much more. Was diagnosed at age of 2, but my symptoms were never connected to CD. At age 26 I'm finally start to get my life back. Still not getting 100% and it takes forever to get any help. Weed has helped tremendously to get through school and in general cope with the pain. Without it I probably wouldn't be here today.
- —Guest James
- Celiac I'm 56, I always know there was something not agreeing with me. 1st I blamed milk, the bloating after a meal, the constipation, so I give up milk, felt a little better, 2nd I read where Diet M Dew was bad for ya. So I divorced that, no change.... sitting in ER for my hubby. .I was getting cramps and feeling crabby....after a roll of tums an a visit with the doc, I was diagnosed with 55 percent gluten sensitivity. ...so it was wasn't the beverages but the gluten I was eating along with them...he says stress will trigger the alergy worse...I love reading your stories. ...
- —Guest Julene
Celiac Disease truly sucks lol
- Severe pain in stomach after eating a bunch of wheat food(pain intensity was similar to getting kicked in the gut), bloating all the time, gas, constipation, irritability, overweight, fatigue, no energy. Mostly slept all the time, depressed, stress, insane allergies all the time (even in winter). Whenever I'd eat gluten, my shoulders and back would break out and my face, developed asthma as well.
- —Guest Akira
OH MY GOD!!!!
- I was diagnosed with celiac disease just last year (16 years old).I tried my best to stay on the celiac gluten free diet and I was a little bit over weight then all of a sudden I gained so much weight. Again I didn't bother to follow the diet (I didn't care) and I lost about over 21 pounds (I now weigh 103). My stomach hurt so much I couldn't walk and all I did was lay down to sleep. My lower back hurts, my skin gets red or puffy when someone touches me (HURTS), I have horrible headaches, random stomach aches, bloating, fatigue, nasea, depression, anxiety etc. Now I'm diagnosed with lactose intolerance and my amylase shot up high for a while. Being a teenager its very hard to switch from eating gluten to completely gluten free. Sometimes I wish I never had the disease but I gotta live with it. I'm completely scared of developing some other type of disease because of accidentally consuming gluten. I hope there's something out there for us all.
- —Guest Michelle
issues with everything
- I had my first colonoscopy endoscopy and biopsy 3 yrs ago. Been a struggle since I wasn't confirmed with celiac but my insides were like an open sore that needed to heal. Depression anxiety irritability and all the wonderful dull food make it hard but I'd rather do this then suffer. Stress makes it worse. Wish I had more friends with these issues. Good luck to you all and god bless!
- —Guest angie84
- I have pain under right rib, diarrhea and constipation, stomach blows up immediately after eating with such a sensation of fullness I swear at times that my stomach is going to explode but have not over eaten. I have low vitamin D, reflux, I will have these little blisters appear suddenly on my hands and feet only and itch like crazy. I scratch them until the blisters bust (gross I know but only get relief from itching when it burns). I have gained weight like crazy 10 pounds in 8 weeks. So tired and no energy. I have extreme pain from gas settling under right rib for days! I have osteoporosis. I am 45 years old. Has hysterectomy at age 29. Had endoscopy few days ago and waiting for bioposy results from small instestines. Dr. said I have hiatal hernia and stomach lining was very "angry"??? At my wits end!!!!!!!!!
- —Guest Guest Kay
swollen limpnoid, stomach pain, vomiting
- I started getting severe upper stomach achs, with swetting, vomiting and also noticed my limpnoids on my stomach would swell from a pea size to the size of a quarter !! I would get acid reflux , bloating and hard to swollow !! Now with a 100 % gluton free diet I have no symptons , feel more alert, dropped about 15 pounds , also all belly fat and luv handles and have noticed lots of energy !! I am taking a rice protein powder and working out ,,,, I look and feel like I did as a teen !! my dianosis was I am celiac !!
- —Guest Ron
- Wow, I feel I might now be getting somewhere. My 88 year old dad has been ill all this year, he has always had stomach problems but is now getting dizziness and tingling legs, had every scan, test, x-ray etc. known to mankind, his G.P just said at his age he is lucky to still be alive and sent him on his way, however, I am now going to request a blood test! he is otherwise a fit healthy man, so, hopefully this will sort things out once and for all, thank-you everyone.
- —Guest Annie
- I was diagnosed with celiac at 54 through a biopsy and blood tests. I have never smoked yet I have COPD. My lungs are shot. I have to wonder if undiagnosed celiac did not attack my lungs. I never had the typical gastro intestinal problems associated with celiac. I did have brain fog, was burnt out all the time, had ADD, and just felt off all the time. When I went in for my over 50 colonoscopy I had them do the endo as well. I had no doctors order for the endo I just wanted it done as I felt so bad. I actually retired at 50 I felt so bad. I had also been seeing an immunologist for over 30 years for horrible allergies. I had told him several times that it seemed like my whole system was inflamed from my mouth to my tail. In fact I had hemorrhoids that also went away when I stopped gluten. Well evidently the damage to my lungs is done and will never improve. My pulmonary doctor seems to think that there could have been a connection between my lung problems and celiac. I think so as well.
Diagnosed A Coeliac In 1966
- I was not yet two years old in 1966 when we moved to Malta from Washington DC, but I was clearly dying. My abdomen was swollen to frightening levels, my eyes were sunken, my hair fell out in chunks, I threw up all the time and I was covered in eczema. We were lucky to move to Malta: while Washington's best doctors scratched their heads, the Maltese doctors recognized it immediately and took me off all gluten and chocolate, prescribed frolic acid, and the tide turned immediately. They did say that the symptoms might disappear completely at puberty, and sure enough they did. I could eat gluten and chocolate freely, and did so for a decade until an Australian study came out showing that "recovered" coeliacs who ate gluten had high risk for MS, neuropathy, ulcerative colitis and other wonderful side effects. My duodenum perforated two decades later and I am now going to have to return to the diet of my youth. I am eager to be over this latest bout of coeliac-related illness!
- —Guest Gwenyth
non rem narcolepsy self diagnosed
- Gluten free diet..helped... no more migranes...no more sleep attacks some were one and half hour aft waking up....hope this helps some one out there....good luck....I'm not diagnosed....just tried diet on a whim
- —Guest margaret
- When I visit others home, I return home with the rash and itching celiac causes. I don't eat or drink anything while visiting, just sit in their environment. What can I do to alleviate this problem, short of never leaving my home (which is gluten free) or making other feel uncomfortable.
- —Guest Wanda