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Jane Anderson

How Often Do You Have Symptoms?

By January 13, 2014

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How often do you suffer from symptoms of a glutening? Is it never, or constantly, or somewhere in between?

If the response to my post on this subject (Study: Gluten Ingestion Symptoms Frequent Despite Gluten-Free Diet) is any indication, lots of us suffer from symptoms of celiac disease or non-celiac gluten sensitivity far more often than we would like.

This caught my attention, and so I looked into it. According to the various studies that have been done, up to 60% of us continue to have frequent symptoms, despite following a careful diet.

You can learn the details here: How Many People Continue To Have Symptoms on the Gluten-Free Diet.

Do you still have symptoms? How often? Vote in our poll, and see how others voted, too!

Keep up with the latest in the celiac disease/gluten sensitivity world -- sign up for my newsletter, connect with me on Facebook and Google+, or follow me on Twitter - @AboutGlutenFree.

Photo Getty Images/Jamie Grill

December 5, 2012 at 12:41 pm
(1) Doug says:

Hello Jane, you seem to have a grasp on this monster, one that is different for some, and the same for others. I started this diagnosis with absolute confidence, and knowing that I would learn as I go. However, even as I find a path in my food choices, and once I maintain a comfort level – it seems to come back to haunt me. Mainly with the brain fog, and mostly with migraines. My diet is changing yearly. Things that I once held as a staple are eliminating themselves. The basic food of legumes, soup, and brown rice are the items found in my frig. I have noticed the gluten free items are eventually causing problems. So, as I return to the grocery store, my path down each isle is habit. I realize the repetitive nature of my actions, but I am slowly, over time, eliminating items for hurting me. Nothing I eat is processed. On an objective level, through my explanation, it may sound obvious. However, I have studied, and keep a food diary, and an open mind, and I still notice a funneling affect of food narrowing my choices. And again, my diagnosis was in 2000, so practice is not the issue. It is something deeper. It is not my supplements, or any obvious items. I have anemia, and hyper eosinophillic syndrome. I have osteo penia in my hips, and other things in my past.

December 5, 2012 at 12:41 pm
(2) Doug says:

My mother died from complications of non-Hodgkin’s lymphoma and thyroid cancer, and she had similar symptoms as I did in my childhood. Without her existence in today’s modern medicine world, I have struggled to set a landmark on my condition. I am not just a Celiac. Now, this comes with much family resistance, one that I have uncovered evidence of our environmental exposure to cotton crop pesticides, and the fun chemicals associated with the crops from 1967 to 1972. Our house was in the middle of the crops, and I was raised there til I was five. My brother feed me mud pies! Air conditioning was non-existent, so the windows were wide open, and our water well was on site also. So, you can see why it is a sore subject with my family. And I am the baby, and the only one with obvious chronic problems. I have been called a faker, among other stuff. But my problems are in me. I know it. All my life I have experienced things I thought were normal. Lastly, to put myself in a category of ‘other illness’ other than Celiac disease, would be accurate. This is difficult to write this in abstract, but you understand my point. And this is in relation to the fact that there are other problems that we all face – the complexity, and the diversity of our symptoms, and how they are alleviated with a diet of this nature. Nonetheless, it is not always the answer. I think that is why I am not the classic celiac case. There is so much more in my head, however, I needed to share this information to let others know that they are not alone. We all are different, but the same. This description is riddled implied meanings, and memories of my pain, but I felt I should share this, and to pass it on. Thank you so much for your work on this site. Have a great day.

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